Below we've compiled a variety of resources we've found to be helpful to our families over the years. We hope these serve you well over the course of your NICU journey. If you have any questions or suggestions for additional resources that have helped your family, please email us.
Be Tobacco Free: Visit this website for information and resources on the importance of living tobacco-free (always, but especially as a parent).
Building Confidence and Parenting Skills When Your Child is in the NICU-Visit this link for a GREAT overview and list of resources and for parents who are navigating a NICU stay.
CaringBridge: In the midst of a stressful NICU stay, a CaringBridge website can help in so many ways. Send updates and photos to your family, friends, and colleagues all at once (meaning fewer phone calls & e-mails to return); connect with other parents experiencing a similar situation; and receive messages of hope and support. A CaringBridge site is absolutely free and easy to create. Visit their website for more information.
Customized Care Notebook:This notebook is a great tool to use as you discharge from an extended NICU stay. Grab it as you head out the door to appointments and have all the necessary information at your fingertips.
Cone Health Neonatal Intensive Care Unit: We are privileged to work alongside the gifted and empathetic professionals at Cone. Please visit their website for more information about their NICU Intensive Care Unit.
Day 2 Day Parenting: Day 2 Day Parenting offers parents and caregivers the tools, resources, and advice to have a happy, calm, and successful home. Whether you’re a first-time parent, the parent of a child with special needs, a parent looking for milestone-specific advice or someone in between, we’re here to support you so that you can help your child thrive. All of the content on our website is developed and written by our team of early childhood professionals: Physical Therapists, Occupational Therapists, Speech-Language Pathologists, Developmentalists, and Dietitians. For more information, visit their website.
Feeding Tube Awareness: It can feel overwhelming to learn your child needs a feeding tube. We have gathered all of the information and resources you need the most, right from the very beginning. Visit this website for help navigating this process and support from others who have 'been there'.
Graham's Foundation: Graham's Foundation provides free care packages for families facing a long NICU stay. You can request to have a package delivered right to the hospital. To learn how, visit their website.
GI Kids: Visit this website for help and hope as you navigate parenting a child with a digestive disorder.
Hand to Hold: Hand to Hold offers a variety of incredible resources to NICU families, including peer to peer support, an online community, hospital resources, a blog, and podcasts. Visit their website for more information.
Healthy Moms Healthy Babies: Healthy Moms Healthy Babies is a personalized program for women 20-30 years old and their children. The program seeks to help young women have healthy pregnancies and healthy children, and maintain a healthy lifestyle between pregnancies. Programs range from childbirth classes, to support groups, transportation assistance, and more. Visit their website for more information.
Healthy Start: Healthy Start is a home-based support program that works with pregnant women and new parents with stress factors that make parenting an even tougher job. Healthy Start Home Visitors help parents to nurture their children’s development and create a positive living environment for their families. Visit their website for more information.
March of Dimes: March of Dimes leads the fight for the health of all moms and babies. We believe that every baby deserves the best possible start. Unfortunately, not all babies get one. We are changing that. Visit their website for more information.
NC Infant Toddler Program: The mission of the NC Infant-Toddler Program is to provide supports and services to families and children to help them be successful in their homes and communities, by using every-day learning opportunities. We will respect the diversity of families and use evidence-based practices to guide our work. Visit their website for more information.
NCSU Very Important Parents Program: VIP is a parenting program that uses web-based and multimedia platforms to provide education to young parents. Visit their website for more information.
Peek a Boo: Peekaboo ICU hopes to empower parents with information that will not only help them understand their preemies but also help them to learn what they can do so their baby will thrive beyond the NICU days. We take the focus off of some of the more medical aspects and put the focus back on the baby and the parent’s relationship with their baby. Helping parents be parents and giving them an opportunity to celebrate their baby while understanding their needs as they grow and develop in the NICU. Visit their website for more information.
Skin-to-Skin Care: Visit this website to watch and learn about the importance of skin-to-skin time with your little one, especially while they navigate a NICU stay.
Tummy Time: Tummy Time helps your baby develop the neck, back, and shoulder muscles needed to meet infant developmental milestones. It may also help prevent early motor delays and conditions such as flat head syndrome and twisted neck (positional torticollis). The American Academy of Pediatrics recommends placing babies on their backs to sleep and on their tummies to play. Visit this website for more information.
Zero to Three: The mission of Zero to Three is to ensure that all babies and toddlers have a strong start in life. They envision a society that has the knowledge and will to support all infants and toddlers in reaching their full potential. Visit their website for more information.